Tuesday, July 10, 2012
Where to Start....
So the camping trip was cut short a day which I'm ok with because it was miserably hot. Camden started running a fever last Wed. night. Of course I did not pack a thermometer, so Nick had a brilliant idea to use the temp gage in the refridgerator. After 2 rounds of motrin the temp came down. The next day he was very irritable and did not want to do anything, especially outside. We decided to come home around 3. That night I ended up taking him to the Ped at 730. She confirmed pneumonia and prescribed a lovely tasting antibiotic. He was up again all night with a fever and threw up the antibiotic the next morning. After taking a long nap, he was very disoriented and combative. At that point I took him to the hospital. They took us right in. I was really impressed with the Ped ER at Presby. They were all wonderful and very good to Camden. After some motrin and IV fluids he perked up a little bit. Nick unfortunately was still working so it was hard being there by myself. After looking at the chest xray they decided to admit him because the area of pneumonia was so large. I was completely for this because I did not want to take him home and him crash that night. On the admission exam, the Ped noticed that his belly was distended and said she could feel his liver. She wanted an U/S done that night to rule anything out. I honestly did not think anything of it b/c he has always had a big belly. I did think it looked larger, but thought it was from crying and sucking in air from the respiratory issues. He finally went to sleep at 1130 and they came and got us for U/S at 0100. I slept from 4a-6a when the doc came in. She explained that the liver, spleen, and kidneys were all enlarged but weren't sure why. The next day the IV continued, we did several blood tests, and laid around. They decided to keep him another night. I forgot to mention the night terrors he had while we there. The nurses were terrified which was a little comical, but reassured them that he does that a lot. The next day the gastro doc came and explained that she believed that this was something more global such as a metabolic disorder instead of just a GI issue. From there they did more bloodwork and a skeletal survey to look at any anamolies of the bones. There were some labs that came back a little abnormal and some abnormalities of a few vertebra. We stayed a third night. I appreciate home soooo much more now. Staying in that room for 4 days eating hospital food, taking quick showers, measuring urine, trying to catch up on homework, holding Camden down for procedures, and sleeping on a hard cot is not fun at all. I cannot imagine having to "live" there like some of the other patients. Camden charmed the nurses and other staff of course. He was his silly self after a few days, and desperately wanted to go home. At discharge we still had several unanswered questions but had to accept that for now. All of the nurses were great and are greatly appreciated. We tried shower them with goodies too. The funniest thing about the whole experience is how he became obsessed with turkey sandwiches bc they gave him one in the ER. Every meal he wanted a turkey sandwich. As of right now we are still waiting on labs which will take a few weeks. We will then see the geneticist, gastro, and neuro docs. I did have a breakdown last night as I was fighting with him for hours to take his medicine. We both collapsed in exhaustion and slept great. He was so sweet when I was crying and said that he wanted me to cheer up and brought me a beanie bear that he got in the hospital. I have tried not to cry in front of him b/c it makes him so sad. Please keep us in your prayers as we find out what this means for his future. Bliss is doing great too. She is a dramatic dare devil with blond curls that bewitches everyone. Thank you to everyone that visited, brought gifts, and prayed for us.
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